So today was her first REMICADE treatment at the outpatient center at HH. It went well all her readings were good.
It was long SIX PLUS HOURS LONG. But if it works it's worth it. The price is stagering though. For an out patient visit for this proceedure, DR. M said $20,000. I asked our nurse and she said she didn't know for sure but other patients mentioned it was anywhere from $20,000-$40,000 PER TREATMENT. Are you kidding me? Really? YEP and our precent is 15% everytime, she has a treatment.
SO, good thing I never booked those trips this summer. They will have to wait and the van upgrade, we are driving this baby into the dirt! And because of the furlough our belt will be tight this summer.
The one thing I'm thankful for is the Hospital doesn't want our money today and we can do payments. We'll make it, we've done this before. So if you have a $5 bill hanging around or want to join our walking team in September. You can sign up here. add Isabella Fratangelo or The B Team. We need all the support we can get. We need a cure. The more times it doesn't work the fewer the options are. We are almost to the end of options.
I know that Heavenly Father is watching over us and especially Isabella. No matter what our family is forever. That is what I know. We have this connection. Its all good.
Labels: B, CCFA, Isabella, Izzy